Research Results

The Documenting Hope Project is a multi-year research program involving at least two IRB-approved studies. We opened enrollment for our first research study, the CHIRP(TM) Study, in 2018 and continue to enroll participants. Our second study, the FLIGHT(TM) Study opens for enrollment in 2021. As we continue to collect and analyze data we will share new and relevant findings with our community. Be sure to sign up to get the latest findings and research opportunities delivered right to your inbox.

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Home Inventory

Home Inventory

In order to assess any child’s “total load,” it is critical to perform an inventory of products and materials in the home. Josie Nelson, Programs Director, and Beth Lambert, Executive Director, performed a Home Inventory for Ty’s family, cataloging what types of...

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Filming FLIGHT™

Filming FLIGHT™

An important part of the FLIGHT™ Study is the capture of film footage, so that others can follow along with the FLIGHT™ Study participants, and learn about health and healing, just as the families learn. Here, Ty’s family was visited by a film crew and interviews were...

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Meeting the Parent Mentor

Meeting the Parent Mentor

Each FLIGHT™ Family is provided with a parent mentor. The parent mentor is someone who has an impacted child and has been through many of the same biomedical tests and assessments and that are a part of the FLIGHT™ Study.  In the earliest days of Ty’s baseline period...

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